Registry  Platform – Residras

Research Projects

Events

Message from dr. Charlotte Dravet

The patient organizations are very important for support and information, but also to establish fair relations with the physicians.

Improving the lives of people living with Dravet Syndrome

For all its projects, DSEF was awarded by Eurordis the title “Patient Organisation 2017”.

DRAVET SYNDROME IN NUMBERS:

1:22.000

Incidence of Dravet Syndrome in Europe

72%

Patients have motor impairment

16

DSEF members

1.500

Patients represented

Collaborations